Multiple sclerosis caregiving page 2 of 8 doing your best does make it better radiografia columna lumbar

“multiple sclerosis: a journey through time” is an audiovisual tour of the history of multiple sclerosis. Available in english and german, the online presentation is offered by the german MS society, deutsche multiple sklerose gesellschaft (DMSG) and AMSEL association, a self-help and advocacy organization for MS patients in baden-wuerttemberg.

The history of MS gives viewers an excellent overview of the history of this neurological disease beginning in 1395 AD. It’s a very useful educational tool. For example, I didn’t know lumbar punctures have been used for diagnostic purposes since 1913 or that 1972 brought the use of visually evoked potentials to measure the speed of optic nerve conduction as a diagnostic tool for multiple sclerosis.


First, a broad perspective puts your personal situation into a context.Radiografia columna lumbar it’s easy for some caregivers to feel alone. Others, overwhelmed by the newness of a diagnosis, are confused and without foundation – especially if all they know about MS is the little that most people who are untouched by it know.

Third, having one’s perspective broadened opens one up to experience hope. I’ve considered many times that even if a cure is discovered, it still will not restore the lost neurological functioning. If my wife has lost the ability to walk or swallow, having a cure for MS will only stop those symptoms from worsening. But the history of MS projects into the future, too. It is not unreasonable to think that medical research will, as the presentation offers for 2020, discover a way to repair myelin.

Ampyra [am-PEER-ah], the brand name for a new drug named fampridine-SR, has been approved by the US food and drug administration for the treatment of multiple sclerosis.Radiografia columna lumbar the new drug is the first multiple sclerosis drug to enhance some neurological functioning for MS patients.

Dr. Andrew goodman, chief of the university of rochester medical center’s (URMC) multiple sclerosis center, and his colleague steven schwid, M.D. Who died in 2008, have studied the newly approved drug for more than 10 years.

Because most MS treatments are studied in terms of the way they slow the disease progression or prevent relapses, this medication required a new way of thinking about evaluating a multiple sclerosis medication. Because fampridine-SR restores some function, the study protocols developed at URMC were designed to measure functional outcomes. One study protocol measured the walking speed improvements over 25 feet.

According to the news release on the URMC web site, a significant number of study participants with multiple sclerosis increased walking speed by 25%, reported they could walk farther, climb stairs better and stand longer.Radiografia columna lumbar

In fact, it would be impossible not to because the caregivers include information about their particular needs. Perhaps it’s empathy, or a sense that we’re in this thing together, that always gives me a little sadness when I read requests for help. I so wish there were a way to eliminate multiple sclerosis.

While looking over this week’s emails, I realize that there are a couple of general pointers I can offer to caregivers who are looking for support in their local communities. I’ll summarize them here. They may not work for every MS caregiver, but the principles will hold true for most.

1. Find a religious community you feel comfortable associating with. It’s nearly a universal truth: those who seek relationship with god will have an interest in serving their fellow man.Radiografia columna lumbar if you have lived in your community for a period of time and have participated in a local faith congregation, you know what I mean. Sunday school classes, bible study groups, all sorts of small groups seek to minister to others in need. If you become comfortable enough with a local minister to be vulnerable and share your need for support, I think the chances are good that you may find exactly what you need.

2. Don’t limit your search to caregiver support groups related to multiple sclerosis. The social services department of many hospitals will offer support groups for caregivers in general, unrelated to a specific disease. Again, in their ministry to the community, many churches will offer caregiver support groups.

Can a non-specific caregiver support group be helpful for you?Radiografia columna lumbar will other group members be able to relate to your unique needs as a caregiver for a multiple sclerosis patient? Probably, yes. Much of the stress related to being a caregiver is unrelated to the particular disease. Much of it is caused by the emotional issues that arise, the interpersonal struggles that come between you and the person for whom you care, the general issues related to scheduling, managing medical matters, financial difficulties, juggling the parental roles of two when only one parent is able to be active. You get the idea.

4. National and international multiple sclerosis-related organizations have chapters across the country and around the world. These are good resources for caregivers and patients. Take advantage of the connections they have in your community by visiting the web sites of organizations like national MS society, multiple sclerosis association of america, and the multiple sclerosis resource center.Radiografia columna lumbar

5. Finally, don’t give up in your search for support. I cannot stress strongly enough the fact that if you do not take care of yourself, you will not be able to care for your loved one. Find the support you need, even if the search for help is a frustrating process. Among religious communities, non-specific caregiver support groups, the internet and MS-related organizations, support for caregivers is available in many communities.