Taking a chance on fetal surgery hernia lumbar cie 10 for luto

Words no expecting parents anticipate hearing. Going in for our routine twenty-week ultrasound, I was so excited to find out what we were hernia lumbar cie 10 having. After about fifteen minutes of maneuvering the wand all over hernia lumbar cie 10 my modestly pregnant belly, the ultrasound technician informed us she would be getting the hernia lumbar cie 10 doctor. The doctor came in and that was when we heard hernia lumbar cie 10 the words that would forever change our lives. Everything else seemed foggy after that. I remember hearing words like, “the bladder isn’t releasing urine” and “the amniotic fluid level is dangerously low.” to be honest, I understood very little, until he sat us down in a consultation room and hernia lumbar cie 10 gave us our options. That was when the grim reality of our situation hit hernia lumbar cie 10 me. Without intervention, our baby was likely to not survive the remainder of hernia lumbar cie 10 the pregnancy.

Our maternal fetal specialist went on to explain our baby hernia lumbar cie 10 was suffering from a condition known as a lower urinary hernia lumbar cie 10 tract obstruction, also known as LUTO. He gave us information and warned us not to google hernia lumbar cie 10 any of what he was about to tell us, because there would be a lot of misinformation on the hernia lumbar cie 10 internet and he didn’t want us to make a decision based on what hernia lumbar cie 10 we might find. He went on to explain that because of the obstruction hernia lumbar cie 10 in the urethra, urine was unable to be released from the bladder. The bladder was large, and the amniotic fluid levels were dangerously low because a hernia lumbar cie 10 large portion of the amniotic fluid is made up of hernia lumbar cie 10 the baby’s urine. It’s a constant cycle of ingesting the amniotic fluid, which aids in the development of the baby’s lungs and other vital organs, and then excreting the urine. When there is a hiccup in the process, the entire cycle stops.

The rest of that day was a nightmare. Friends and family were calling anxious to hear the outcome hernia lumbar cie 10 of our ultrasound and find out if we were having hernia lumbar cie 10 a boy or a girl. It was difficult to get through the phone calls, trying to explain what we were still struggling to understand hernia lumbar cie 10 ourselves. We had a million questions and went against our doctor’s advice, but we found the fetal health foundation, known at the time as fetal hope. It was exactly what we needed.

We read about a little boy named elijah wick, who was five years old at the time. We were given the hope we were looking to find, that there was a possibility our baby could have a hernia lumbar cie 10 good life. This little boy, living only about 500 miles away in jacksonville, florida, had survived a fetal surgery for the exact same condition, was living a “normal” childhood. This was the one sliver of hope we needed to hernia lumbar cie 10 give us the push to do everything we could to hernia lumbar cie 10 save our baby’s life.

I had several tests performed that revealed we were having hernia lumbar cie 10 a boy, and that our son was a candidate for fetal surgery. We traveled to the children’s hospital of philadelphia once we got the news. The doctors wanted to make sure we knew that fetal hernia lumbar cie 10 surgery would not be a “cure”; that it would simply aid in reaching a viable delivery hernia lumbar cie 10 date. More surgeries would be needed throughout his life. The fetal surgery was a success, and I went back home where I would continue routine hernia lumbar cie 10 monitoring.

One month after the surgery, the shunt placed dislodged, so we opted to go back to philadelphia for a hernia lumbar cie 10 second procedure. The doctors predicted premature labor due to all the invasion hernia lumbar cie 10 of the womb, so they suggested I stay there until delivery.

At almost 34 weeks gestation, on november 21, 2009, I delivered a 5 lb. 9 oz little boy, who we named elijah. At birth, they declared that he was in kidney failure and that hernia lumbar cie 10 his lungs were underdeveloped. While at CHOP, he was on various breathing machines and he also had hernia lumbar cie 10 his first surgery. He was relocated and later discharged from the NICU at hernia lumbar cie 10 all children’s in st. Petersburg in january 2010.

Over the next two years, he would have more procedures, including the placement of a g-tube and multiple bladder modifications. In the spring of 2012, we moved to indiana, where he’d continue his care at riley children’s hospital. We began the workup necessary for him to receive a hernia lumbar cie 10 kidney transplant. Our routine consisted of going to the hospital three times hernia lumbar cie 10 a week for him to receive hemodialysis, which lasted 3-4 hours each session. In september 2013, elijah received a kidney from his uncle (my brother). It was the beginning of a whole new life for hernia lumbar cie 10 eli.